On August 28, 2021, Ayla woke up feeling weak and tired. It was our
youngest child's birthday, and we were trying to spend time outside
together to celebrate and enjoy the day. Ayla ended up taking a nap in a
chair in the garage. Later, while trying to go back inside, she passed
out.
Rich immediately went to her and checked her pulse. It was around 35 to
40 beats per minute. He carried her inside, and Lauren took her to the
emergency room.
A few hours later, Lauren called Rich and told him that the doctors had
double-checked the bloodwork, but the results indicated that Ayla had
cancer. She was airlifted from Minot, North Dakota, to Fargo, North
Dakota, which had the state's only inpatient pediatric cancer hospital,
four hours from home.
A few hours later, the diagnosis was confirmed. That began Ayla's
six-month treatment regimen.
We were told that if Ayla needed a bone marrow transplant, we would have
to identify another hospital because Sanford in Fargo could not perform
that procedure. We identified Primary Children's Hospital in Salt Lake
City, Utah. Around that same time, Rich applied for an Air Force
assignment to Hill Air Force Base in Utah. He was selected for the
assignment, and our family relocated to Utah on January 1, 2022.
Ayla completed treatment and rang the bell in March 2022.
That move also came with great personal sacrifice. Rich's sons, RV and
GV, ended up staying in North Dakota with their mother when the family
moved to Utah, after having spent their entire lives with Rich.
The next 15 months were filled with memories, trips, adjustment, and
family time.
Then, in July 2023, our family received the worst news. Ayla's cancer had
returned. This time, she would need a bone marrow transplant.
She went back into the hospital on July 19, 2023. During the first month
of treatment, her appendix burst, but because she was neutropenic,
doctors had to wait before they could perform surgery. In September 2023,
she had surgery to remove her appendix and, at the same time, underwent
ovarian tissue preservation.
Soon after, we received the news that doctors had found a 10 out of 10
bone marrow match. Ayla received her transplant, and the long road to
recovery began.
In November 2023, Ayla's lungs hemorrhaged, her liver began failing, and
her kidneys were under severe stress. She ended up in the PICU on a
ventilator for six weeks.
Thankfully, Ayla fought through it and was able to make a full recovery.
Today, she is still on antivirals and other medications because of the
side effects of treatment. Childhood cancer does not end when treatment
ends. The impact continues long after families leave the hospital.
Our family could not have made it through the past three and a half years
without the support, love, and care of so many people, including many
incredible nonprofit organizations.
But there are still gaps. There are still things families need help with.
There are still burdens that fall through the cracks.
That is where Bee the Hope will serve.